Friday, August 6, 2010

Finally, a possible diagnosis

Just returned from the hospital, we weren't there very long. He was very tired, and the same weird agitation. He hasn't been able to sleep because he is so uncomfortable and has suitcases under his eyes. Weighs 170 pounds. The possible diagnosis is Guillaine Barre syndrome, and even though they suspected that from a spinal tap and nerve testing (he said the first did not hurt, something I'm deathly afraid of, but the nerve testing was painful...yeah) and they will have him on an IV treatment for 5 days, they weren't going to start it until tonight...it's been several days, why the hell not start it right now??? And that symptoms will most likely get worse first, even with treatment...so, again, why the hell are they waiting to start treatment? It's like 8-10 hours. Frustrating. Also, the staff isn't as friendly at this hospital, when I told someone he thought he had to go to the bathroom, she answered, don't you want to wait until after you've eaten? It's 4:30, he asked for dinner at 7:30 because of blood sugar issues, seriously, if you gotta' go now, do you really want to wait 3 hours? Seriously? Seriously? I think they might hate me:) (Especially if your nerves are damaged controlling your lower body.)
Anyway...hospital is in a pretty area of town, and the clouds finally cleared for a pleasant summer afternoon. Traffic was the typical Friday afternoon crush of cars, but took the back way to the freeway and drove across a series of old bridges over the slough. Stopped at the rest area to wash my hands, feel dirty somehow, and following the lure of the "free coffee" sign. Tried to get a danish, and almost succeeded when a second volunteer said "no, they are for breakfast." So had a bad cup of coffee instead which I proceeded to drink in the car because there wasn't a lid, and then walked back to the restrooms, and then through the giant tree stump before getting back in the car and driving north. The upshot of all this is that from the time we left the hospital room, until we got to the house, it took almost 2.5 hours, it should be about 1 hour, 15 minutes. I'm standing in a semi-dark room, missed the sunset, trying to access my dad's email account, but don't seem to be able...sigh.

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